Sheri is drained and tired. Sometimes she thinks maybe she is in denial about how much longer she can care for Bob and "Al" at home. She write this blog daily because Alzheimer's is a daily disease. It is not just the spot you see on the news, or the quick mention on the radio.
It is a personal blog, because Alzheimer's is personal disease. It affects the most personal of issues and it is happening everywhere to someone and that someone's caregiver, every moment of every day. As caregivers we just keep evolving to meet the demands of the evolving disease, making our perspective on our world distorted and convincingly tolerable.
Then even as Sheri says that in her head, her heart is still beating to a different drummer, for reasons even Sheri does not understand.
This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character "Al" that I created in 2008, represents the way that Alzheimer's is invading our daily lives.
There is an archive tab further down the page that starts from the beginning of our journey.
Showing posts with label isolation. Show all posts
Showing posts with label isolation. Show all posts
Saturday, December 27, 2014
Tuesday, September 30, 2014
Living with Bob and "Al"
There are people in every corner of the world experiencing such suffering. Sheri has no right to be dissatisfied with her life. How can she know about these awful things and in the same breath be selfish in her desire for a relationship she can not have? She wants a hug, when children are parent-less, she wants romance when others want food. She wants conversation when others don't have the freedom to speak what is in their heart.
Sheri need to pause ( because breathing deep before taking action brings clarity), praise (because giving thanks for all the things God provides for her, and the promises of what He will bring in the future, helps her see what she does have, and not focus on her losses) , and pray (because asking God to heal our world, give her strength and show her the plan for her life) is the only conversation that will matter in the end.
It helps Sheri when she puts a little perspective on her life.
Sheri need to pause ( because breathing deep before taking action brings clarity), praise (because giving thanks for all the things God provides for her, and the promises of what He will bring in the future, helps her see what she does have, and not focus on her losses) , and pray (because asking God to heal our world, give her strength and show her the plan for her life) is the only conversation that will matter in the end.
It helps Sheri when she puts a little perspective on her life.
Tuesday, July 1, 2014
Living with Bob and "Al"
Sheri is sure God has a plan in all of this. She won't say she is happy about living in this Alzheimer world. Most days the loneliness, the repetition and giving direction overwhelm her. But if she loses her faith that God has plan ( and a good one too), how would she get up each day and face this world. The church service on Sunday was a good reminder that we all have a Goliath standing in our path, Sheri is choosing her faith as her slingshot of choice.
Thank you Pastor Jon I needed that.
Isaiah 41:10
10 So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.
Thank you Pastor Jon I needed that.
Isaiah 41:10
10 So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.
Friday, June 20, 2014
Living with Bob and "Al"
"Al's" lack of ability to identify in Sheri's world , leaves her feeling like she is alone. The spouse she knew was a sounding board her "Bob, you won't believe the kind of day I had" board. When Sheri's stress level goes up in her real world, her isolation goes up in her Alzheimer world. :(
Subscribe to:
Posts (Atom)
