This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog "Al" represents the way that Alzheimer's is invading our daily lives.
In Sheri's never ending quest to find things to keep Bob and "Al" engaged, She was delighted to find her latest "man toy". She found an inexpensive magnet set at the hardware store Bob used to manage, which by the way is managed by "Daughter Number One now, the one who wears her heart on her sleeve." Anyway "Al" was delighted that he could use it to keep all Bob's nuts and bolts together and used it for several hours yesterday while Sheri cleaned the house. Of course, not with out "Al" showing it to Sheri over and over but he had a huge boyish smile on Bob's face, and that is all that mattered.
Simple pleasures, Sheri simple pleasures.
Bob's back pain is intense, but the sharp jabs come no matter what position he is in. Walking , sitting, laying no position is good. The MRI showed no significant changes, but his back is in really rough shape and has been for many years and after several surgery's pain relief is really all that is left. Sheri tried the distraction technique yesterday. She grabbed her camera and went on a short drive. Bob and "Al" were in pain but somewhat content. She stopped for short changing position breaks in and out of the car. Sometimes nature is the best medicine, for Sheri too.
The challenges of additional medical issues with someone that Alzheimer's are great. "Al" does not remember to not bend over to pick something up off the ground because his pain to brain signal no longer connects. So trying to avoid further injury and pain is almost impossible. :(
Sheri hates this disease.
Sheri video was very helpful. Turned out to be a late evening as they wound up getting an MRI right away. Now waiting for an appointment with the back specialist. Bob's back history is long and complicated, and even more complicated with "Al". "Al"couldn't lift his legs twice yesterday and for once it actually happened at the doctors. The problem is, even the doctor is not sure if it is mental or physical. What a strange disease.
Sheri is going to Pause, Praise and Pray.
Bob's back has been really bad. He has been jerking forward in pain. So off to the doctor they will go. With Sheri's luck "Al" will tell the doctor his back has been fine and they will get absolutely nowhere with treatment... and this would not be the first time. But Sheri has a plan this morning, she is going to video tape what he goes through with the pain this morning and take it with her this afternoon."Al" will not win this time. Sometimes you just gotta do what you gotta do!
PS. So there you go Bob that is the plan :)
Bob was feeling better yesterday, however Sheri was not. So in order to keep "them" engaged Sheri brought out one of the 36 piece Alzheimer puzzles again, knowing he can not complete them. Things were going fairly well, Bob finding a piece or two here and there. But then "Al" starting asking for an exacto knife to trim the pieces down and began roaming the house looking for one. She did not have the energy to distract him, so she compromised... "Al" scotched tape the puzzle together.
Sometimes you just gotta do what you gotta do :)