This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.

Sunday, January 22, 2017

Living with Bob and "Al"

Sheri has a dear friend that has the sweetest small dog. It took "Al" a little bit to warm up to Jack but when he did he enjoyed him immensely. Sheri had to laugh as "Al" was gazing over the arm of his chair to investigate the power strip on the floor, she could tell Jack was just as curious and was sure that if Sheri had a "Jack" in her house... "the boys" and the dog would be partners in crime :)



Saturday, January 21, 2017

Living with Bob and "Al"

Well apparently many things can be used to color with, you really have to give "Al" credit for creativity. Last week the medicine capsule, yesterday a Peanut M&M's. Sheri is not sure if this is a good sign or not, but in some strange way Sheri thinks there is some logic in there, especially if you have ever left that "candy coated shell" in warm sweaty hand a little to long, or say... a shirt pocket :)

Friday, January 20, 2017

Living with Bob and "Al"

Sheri took "the boy's" to Walmart to get a few things. Now that "Al" is not stable enough to walk any real distance,  Sheri has adjusted her shopping style so that she can use the wheelchair with the basket attached, this gives her limited room for grocery's but works as a great "get only what you really need right now"  tool (see ... always a bright side lol). Anyway she has been doing this for quite some time but this time "Al" just could not figure out how to sit down. Sheri found herself trying to help Bob bend at the waist but "Al" just could not figure it out. Sheri looked around and realized they were blocking access to all the carts and was growing more and more frustrated. A nice man saw her struggle and tried to help... 15 minutes later they had "the boys" in the wheelchair, but  Sheri was too exhausted to get much shopping done.  Heavy sigh..... :(

Thursday, January 19, 2017

Living with Bob and "Al"

Sheri was trying to get Bob to take his medicine. "Al" decided however that the capsule Bob takes is a crayon and insisted upon attempting to draw with it. Heavy sigh....

Wednesday, January 18, 2017

Living with Bob and "Al"

Sheri is very touched by the outpouring of prays and support. Unfortunately the roller coaster ride of emotions will continue for a while regarding a placement location as the place she had chosen can not provide a shared male room that would be covered by the Elderly Waiver Program, for which Bob is a part of. The other option being to pay  between $500 and $1300 out of pocket over and above Bob's social security. This not feasible. So Sheri will continue to put one foot in front of the other until she can make a new plan.  Sheri does not want to take advantage of all your prayer time, and she did mumble and grumble to God a few times yesterday...but she would not quite call it being on speaking terms yet. So please continue to pray as you see fit.

Tuesday, January 17, 2017

Living with Bob and "Al"

Sheri has a meeting today, about a potential placement location. She feels like she is in a fog ... a dense, heavy, thick fog. Her chest is tight with the thickness of her fear and she cannot breathe.
Somebody please  pause, praise and pray because Sheri is angry and not on speaking terms with God at the moment.

Monday, January 16, 2017

Living with Bob and "Al"

The mental process of deciding to place Bob and "Al" has been exhausting.  Behaviors have become unmanageable. More importantly Sheri can no longer keep him safe. She was feeling housebound again because "the boys" do not like being out in the cold, but the sundowning  started early yesterday and Sheri decided to just bundle them up and put them in the car and go for a drive. Sheri challenged herself to take her camera and see what type of photos she could take from inside the car, since photo opportunity have been few and far between and she is missing her connection with nature and God. She was able to get a few good shots from parking lots so she was feeling a sense of connection to her surroundings again, so much so that when "Al" managed to not only unlock the car door but actually open the car door WHILE SHERI WAS DRIVING  she heard God screaming at her loud and clear that was time to place Bob somewhere where "they" can be safe.









Saturday, January 14, 2017

Living with Bob and "Al"

Sheri is glad to see it is not her stressful life that causes her to forget to check Bob's pockets for randomness. She received a sweet but somewhat frantic email from the Adult Day Center yesterday . The wonderful person who does Bob's shower, puts his shirt and tee shirt in the dryer so it will be warm for him when when he gets out of the shower. (how incredibly wonderful is that? Talk about the royal treatment) Well, it was shower day and she popped them in the dryer not realizing  "Al" had stashed some crayons in his shirt pocket and ... yep melted crayon on his shirts! Too funny! Because Sheri had just done that last week! Sheri was more worried about the Adult Day Centers dryer than Bob's shirts... cause she is still trying to get the wax out of her dryer at home :)
Sheri just loves the staff at Open Circle, they are wonderful. Thank you for all you do.

Friday, January 13, 2017

Living with Bob and "Al"

Bob was wandering around the apartment last evening, in full sun downing mode. "Al" picked up the red mouse to Sheri's computer and began petting it and making the kissey, kissey, sound like he does with the cats. Well it is a mouse:)
Dear sweet man.