This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.

Tuesday, October 16, 2018

Living with Bob and "Al"

Since  Bob's passing in late May,  Sheri has found herself sitting in her apartment starring at.. well nothing.  She doesn't know what she suppose to do with her so called free time. It is like her brain still thinks the boys need her. She cant start projects because her brain still thinks the phone might ring. She can't participate in group commitments, she thinks she wants to but then she she just can't. She is not looking for sympathy, or advice, she knows this is just part of the grief process. She just wants others to know they are not alone, if they have been, or are where she is.

Wednesday, October 10, 2018

Living with Bob and "Al"

Sheri is trying to find herself. It has been many years since she had time to look deep inside and face the sins of her past and the true desires of her heart. She is trying to understand her path, not only where she has been... but where she is going.
God is good.

Friday, September 28, 2018

Living with Bob and "Al"

The beginning of the end Chapter 30

Bob entered the kingdom of heaven on May 22nd lifted up in the arms of angels, He was escorted there by the sounds of his girls playing the guitar and singing "Hallelujah", Sheri can not think of a better way to enter the presence of God. Amen?

Psalm 16:11 “You make known to me the path of life; in your presence there is fullness of joy; at your right hand are pleasures forevermore.”

Wednesday, September 26, 2018

Living with Bob and "Al"

The beginning of the end chapter 29

If Sheri were truthful ( which she promised she would be years ago, about this journey) she would tell you that she carried a lot of resentment about that last trip to the emergency room. Her human nature wanted someone..or something to blame for this decline with Bob and "Al". Sheri knows however, that the last trip to the emergency room was a blessing in one important way. You see the brain MRI they did on that exhausting , seemingly pointless visit to the ER, showed that "Al" had completely taken over Bob's brain and ability for Bob to tell his body what do was gone. This, in reality, was assurance, a blessing in disguise, that Sheri had done absolutely everything she could do for "the boys". This was never in her control and she needed a clear, strong sign that God had them (all of them) resting in the palm of HIS hand.

 For thus said the Lord God, the Holy One of Israel, “In returning and rest you shall be saved; in quietness and in trust shall be your strength.” Isaiah 30:15

Tuesday, September 25, 2018

Living with Bob and "Al"

The beginning of the end chapter 28

For whatever reason "the boys" would not let go, and that place between life and death lingered on. Sheri and the girls stole the mattress from Bobs old bed and placed it on the floor next to the hospital bed that guarded Bobs lifeless body. Sheri rested on the floor next to him.  The low chest rattle of Bob's breathing was both a comfort that he was still with her, yet prevented her from sleeping for fear she would miss his final breath. Hospice was amazed he was holding on so much longer than expected, his physical appearance had deteriorated well beyond a point that human eyes should see.
but one thing it did confirm for Sheri, was that this body we are in, this shell, is only whats protects our souls while we are on this earth, it does not define who we are.

Then shall the dust return to the earth as it was: and the spirit shall return unto God Who gave it (Ecclesiastes 12:7).
 

Monday, September 24, 2018

Living with Bob and "Al"

The beginning of the end Chapter 27

As the days dwindled down, Sheri and the girls watched Bob's earthly body deteriorate, and everyday was one step closer to total healing for "the boys". One day, in one very quick moment, Sheri was sure she saw Bob make eye contact with her. She saw the only eye that was slightly open, follow hers as she spoke to him comforting him, loving him, reassuring him. In that moment she knew Bob was close to being whole.

2 Corinthians 4:17-18


17 For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. 18 So we fix our eyes not on what is seen, but on what is unseen, since what is seen is temporary, but what is unseen is eternal.

Thursday, September 20, 2018

Living with Bob and "Al"

The beginning of the end Chapter 26

The workers at the facility were trying hard to help Sheri and the girls. They let them use one of the model apartments to sleep in as there was not enough room for the three of them to sleep in the room with "the boys". This was a huge help because this way they could stay with Bob in shifts while the others got some sleep. They brought in trays of food in at no charge... Sheri was very grateful, and on Monday when the higher ups saw the "storage room" they were in they quickly moved the stacks of cabinets to a different location, and apologized profusely. This gave the family room to spread out. Sheri and the girls were grateful for the kind treatment.
Philippians 4:6: Don’t worry about anything; instead, pray about everything. Tell God what you need, and thank him for all he has done.

Wednesday, September 19, 2018

Living with Bob and "Al"

The beginning of the end chapter 25

Bob and "Al" were in a shared room, and because both of her daughters and their husbands were there constantly, they allowed Bob and "Al" to move to another room they needed privacy desperately. The faculty only had one other room available, they were using half of the room for storage of new kitchen cabinets stacked double high that were to be installed next week. The smell of fresh wood, stain and cardboard permeated the room. Has they have done so many times before on this very long journey, Sheri and the girls had tearful giggles knowing that Bob, the fix anything, build any thing man was right at home, these were smells that Bob would not have found offensive, as Bob the man who managed a hardware store and mixed paint all day, was very familiar with. The irony of the situation brought more laughter, that was really grief running down their faces.

Revelation 21:4 “And God will wipe away all tears from their eyes; and there will be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.”


Tuesday, September 18, 2018

Living with Bob and "Al"

 The beginning of the end chapter 24
Sheri was overwhelmed, scrambling to make funeral arrangements.She had know idea how expensive a funeral was.  All in for casket burial $12,000.00 dollars with the least expensive casket. One funeral director  (who could tell Sheri was trying to be practical ) told Sheri to come to come back after he passed. Sheri felt like he thought she would by a more expensive casket in her grief.
At any rate, Bob had lost the ability to swallow and the expected date went from 10 days to 2 or three in the blink of an eye. 
2 Corinthians 4:16
Therefore we do not lose heart, but though our outer man is decaying, yet our inner man is being renewed day by day.


Wednesday, September 5, 2018

Living with Bob and "Al"

The beginning of the end Chapter 23
 
After the last call saying "the boys" had 2 or three months, it seemed like each day a new call came with the news of the Bob and "Al" fading quickly. Hospice was wonderful and Sheri felt comfort in their experience and calmness. From the initial evaluation of an unknown time frame... we were down to ten days. Sheri's heart was hurting but knew "the boys" needed to be free of this awful disease. 
 Revelation 21:4 “And God will wipe away all tears from their eyes; and there will be no more death, neither sorrow, nor crying, neither shall there be any more pain: for the former things are passed away.”