This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.

Thursday, August 6, 2020

Living with Bob and "Al"

Please all dear friends. Those of you who know me well, know that I could not have survived financially with out the ability to work through Roberts disease progression. He spent 5 years at Open Circle Adult Day Center. This was a true life saver for my family. PLEASE PLEASE PLEASE let Bob and Al's voices be heard. This only takes a quick couple of seconds to send an email to support funds being allocated for these services that are desperately needed. the link and email is provided for you!
Thank you!

ACT For Older Adults
Older lives are not expendable
Cassia
Join us as we urge Congress to provide critical support to home and community-based services providers.
Leaders in Congress are negotiating the next major COVID-19 relief package. NOW is the time to make your voice heard to ensure that the critical needs home and community-based services providers are included in the final package. This includes support for adult day services providers, PACE organizations, and providers of in-home services (personal/home care, private duty nursing, and more).
The House-passed Heroes Act recognizes the importance of home and community-based services in the continuum of care for older people. But the Senate package makes no mention of these important services.
Tell Congress that the next COVID-19 relief package must include home and community-based services provisions.
Act NOW by emailing your members of Congress.

Sunday, July 19, 2020

Living in the shadow of Alzheimer's

Sheri is still tripping over the shadow of Alzheimer's. She has tried running from it, ignoring it, pretending it didn't exist, and of course her old stand by of laughing at it. She knows she just needs to embrace it but it is so hard, because at the end of each day as the sun sets, the harsh shadows come back, but as she reaches for the shadow... it fades away.
Sheri needs to pause, praise and pray.

Saturday, January 4, 2020

Living in the Shadow of Alzheimers

Sheri is still working on finding herself, and finding joy. Miss Elsie Rose turned one year old on Dec 30th..Sheri made a sock monkey out of Bob and "Äls" socks with a touch of Bob's flannel shirt, as her gift. Sheri definitely found the joy part. :)


Wednesday, November 13, 2019

Living in the Shadow of Alzheimer's

Sheri is still working on finding herself. Last week she found herself taking Sir Cooper on his first Air plane flight to San Antonio Texas for her Fathers 86th birthday. They had a great visit, and as usual Sir Cooper was the star of the show..
" The Adventures of Sir Cooper and the Wandering Widow" :)










Wednesday, October 23, 2019

Living in the Shadow of Alzheimer's

Sheri was invited to be a part of an Alzheimer's Caregiver Advisory Board in Washington DC this past weekend. This was way, way out side her comfort zone, but she put on her big girl pants and went! Sheri felt a little like a fish out of water to be included with some very well known authors and people very involved in the Alzheimer's world. Everyone there embraced her, and valued what she had to contribute, giving her a confidence in having shared her journey with Bob and '"Al".
Sheri felt very honored to have been asked to this event.
God is good, all the time.

Wednesday, October 9, 2019

Living in the Shadow of Alzheimers

Sheri keeps having dreams with a reoccurring theme. In the dream/nightmare "Äl" is driving after Bob's license to drive was taken away. Sheri is in the car and is begging "them" to pull over. Sheri thinks even though it has been almost 1 1/12 years since Bob passed away, and years and years since they pulled his license, Sheri is experience some of the true fears she had during those years when survival mode was her mode of operation.
Sheri still needs to pause, praise, and pray.

Monday, September 30, 2019

Living in the Shadow of Alzheimers

Sheri is still searching for self.

Isaiah 41:10 10So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.

Wednesday, May 22, 2019

Living without Bob and "Al"

Sheri is having a hard time accepting that it has been a year today since Bob and Al became one again, rejoicing with Lord. She is sure he is singing in the heavenly choir.
Sheri needs to pause, praise and pray.


Tuesday, May 21, 2019

Living with Bob and "Al"

This is 8 minutes of Bob and "Al" trying to put Bob's back brace on. It is important to understand what cognitive impairment really looks like. This is 8 minutes long for us, but to Alzheimer's there is no clock. Watch carefully as "Al" struggles at first to put his back brace on, and then how quickly he looses track of the task and soon has no idea what he was doing at all. This is true cognitive impairment. Please watch to the end Thank you.


Sunday, April 21, 2019

Sheri has been under the weather, physically and emotionally. Turns out what she needed was time alone with God and her camera. The concentrated focus through that lens reminds her that God knows every ounce of her being, even in this world of chaos.
Sheri needed to pause, praise and pray.