This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.

Saturday, February 13, 2016

Living with Bob and "Al"

Sheri is not sure why the pony bead thing is working, and Sheri is not even sure what "Al" thinks Bob is doing with the beads, because all he is doing is sliding them around on the tray, but whatever it is, it works. :)
Simple Pleasures

Friday, February 12, 2016

Living with Bob and "Al"

Sheri has seen many articles on whether lying to dementia patients is okay. The lies we tell because they don't remember things such as the parent died and you don't want them to relive that pain. Or they are fearful and want to go home and you say they will go home soon. Sheri is certainly not an expert on the subject nor does she condone lying in "our" real world but here is the thing, the Alzheimer world is not "our" real world, and for the those of us caring for someone with an"Al" playing havoc in their mind the lie is a form of comfort that is part of meeting them in their world, meeting them where they are, which is one of the ways to calm them, comfort them, and help them live in what has become their reality. We are the ones with the flexible thinking and we need to use it. Hence Sheri made the decision to take some of the stress of  the morning off of herself by figuring out how to get Bob to ride the Metro Mobility bus to his "work" (code for Adult Day Center) in the morning. This is door to door, person to person service because he as listed has 100% disabled. The only convincing Sheri had to do was to explain that "work" had sent the choir bus to pick him up, because they want to make sure he is there for choir and although hesitant the first day or two "Al" is now bragging about the royal treatment he is getting from "work". Flexible thinking is okay and necessary to survive in their world :)

Thursday, February 11, 2016

Living with Bob and "Al"

Sheri only looked away for moment and "Al" was scrubbing the bathroom sink with Bob's toothbrush. Maybe "Al" is trying to share Bob's opinion on Sheri's " live in the moment" but neglecting the housework mentality.  :)

Wednesday, February 10, 2016

Living with Bob and "Al"

Sheri has been trying to live in the moment, but in doing so she forgot that all the dishes in the sink and the laundry can not move to the next moment ... without her :)

Tuesday, February 9, 2016

Living with Bob and "Al"

There are certain things that Bob says over and over during the day, but it is always the same thing. Other than "what is the plan?" He very rarely asks a question. Night before last out of a sound sleep (finally) Bob pops up (well, not quite pops up) on one elbow and says " Oh, are you awake too?" Sheri startled by an  impromptu question and tired of the many times Bob had already been up said "nope." To which "Al" replied " Okay thank you" and promptly went back to sleep.
Always a gentleman, a confused gentleman but a gentlemen.

Monday, February 8, 2016

Living with Bob and "Al"

Sheri needed some time to get laundry and other chores done around the house so she gave Bob his beads and turned on his favorite singer Daniel O"Donnell. Part of the DVD apparently had a scratch in it and  the DVD got stuck. Dear confused "Al" acting on Bob's problem solving experience, reached down to his beads, and without looking up mumbled "maybe if I move these around a little bit it will come back on:)
Gotta love him~

Sunday, February 7, 2016

Living with Bob and "Al"

"Al" has spent the last 45 minutes trying to get his watch correctly placed over his sleeve this morning. (and he is still at it as she writes this) Sheri feels terrible because she has not dressed Bob yet and she does not think she should take Bob to church in his pajamas. :)

Saturday, February 6, 2016

Living with Bob and "Al"

"Al" is storing up Cheezits again. Last night there were 2 bags in Bob's flannel shirt and loose ones that made it... well Sheri won't go there but some how the Cheezits did. :)
Heavy sigh.

Friday, February 5, 2016

Living with Bob and "Al"

As "Al" struggles with simple basic life tasks, Sheri misses Bob the build anything, fix anything, man that built shelves from floor to ceiling to support all of Sheri's shall we say creativity. Bob never complained about her "creativity" obsession (code for to much craft stuff), so it is Sheri's turn to deal with Bob and "Al's" hand slapping, "Al's" version of "creativity obsession".  :)

Thursday, February 4, 2016

Living with Bob and "Al"

When Sheri dresses "Al" and helps him button his shirt, Bob will say "whoever thought of putting on these tiny buttons is sadistic". Sheri just agrees and nods, but she knows that is code for  "I have no idea why I can't button my own shirt."