This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog "Al" represents the way that Alzheimer's is invading our daily lives.
It was cold and windy last evening and as Sheri and Bob were watching out the window, Sheri said "well I think it is too windy even for the birds." Bob replied " well, not for those, they are eating"(pointing at one of the bird feeders.)" Sheri said oh, I don't see them, where are you looking?" "Al" getting frustrated with Sheri started shaking is long pointer finger at the window saying "there, there."
Even though Sheri has had Bob's eyes checked, "Al" is having difficulty identifying things he sees. The house across from the back yard is a lake, the street lights are fire, and anything red is a cardinal. With that type of confusion in "Al's" head no wonder he so tired and goes to bed at 6;00 pm. :(
"Al" is sure they have dissolved the choir, because they did not sing at the annual Spaghetti Dinner last night at work (Code for Adult Day Center)
Poor Bob always worried about his place in the choir, but he feels like he belongs and has a purpose and that is what is important.
Sheri is in that place again. The one that comes on with out warning. The one where her heart is in her throat at all times. Usually it means she needs a few hours to herself to breathe and think. She hates when she is in this place, it is suffocating. She thinks it came to the surface yesterday when her new boss asked her when she was taking her vacation. Vacation? Vacation is bonus sick time in the Alzheimer world. You never know when the bottom is going to drop out so you save every available moment of paid time off to ensure you have a job to come back to, it is the nature of the beast.
Sheri hates this disease.
"Come to me, all you who are weary and burdened, and I will give you rest.
29Take my yoke upon you and learn from me, for I am gentle and humble in heart, and you will find rest for your souls.
When Sheri picked Bob up from "work" (code for Adult Day Center) yesterday,"Al" told Sheri he was "very busy today. He had to review all the forms submitted to check for errors."
Well, Sheri thought to herself, it was tax day... something new for the resume? :)