This blog is about life with my husband who was diagnosed with Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog "Al" represents the way that Alzheimer's is invading our daily lives.

Tuesday, September 2, 2014

Living with Bob and "Al"

Sheri went driving again yesterday. She went to a couple of places.She found another nature center not to far from home. Bob and "Al" really enjoy nature centers. Then she saw a sign that said "Water Bird Observation Center" and they followed the very long winding dirt road to the location. They got to the area and they had to park. As usual she became a little apprehensive because there was no one there and it appeared that they needed to walk quite a ways down a wood chip path. This is always a worry for Sheri, not knowing how far they will need to walk in these park areas because of Bob's back, even with his cane, this can be very slow process.
The wood chip path was surrounded by trees and seemed to go on forever. Sheri told Bob that she thought they should turn back soon ( mainly because of Sheri's anxiety, lol she really should do something about that!) Anyway just as she started to turn around and go back, frustrated that they cold not find the right area, Sheri caught a glimpse of a small opening in the trees on the right of the path. Sheri said "Oh wait what is that?" They stepped through the opening and the view was just breathtaking. They were high up on a hill looking down over a preserve. It was a small area, room for just a handful of people. There was a cool breeze blowing and even a picnic table to sit on. Sheri is not sure why but the surprise of  what was hidden there absolutely elated her. She felt such a sense of peace and joy, God knew just what she needed yesterday, and as they stood there together, life felt normal and care free... and the joy is still in her heart today.


Monday, September 1, 2014

Living with Bob and "Al"

Three days off with Bob and "Al" on a long holiday weekend is challenging for Sheri. She decided to to put Bob and "Al" in the car and just drive. Even though Sheri is not a driver by nature, there is something very freeing for her about driving. She thinks it is because Bob does not expect anything of Sheri while she is driving. She is doing what she needs to be doing and Bob and "Al" stare out the window, and now a days with phone navigation she is not as paranoid about getting lost, when "Al" starts reading every street sign and tries to give her directions. :)
Thanks David for reminding me about driving. :)

Sunday, August 31, 2014

Living with Bob and "Al"

Bob can no longer do his 36 piece Alzheimer puzzles. "Al" is frustrated and impatient. Sheri tries to encourage him but to no avail. She will say "you are the puzzle maker, I am the picture taker" Bob used to smile when Sheri said that, with pride written all over his face.
Such subtle and not so subtle changes.

Matthew 6:25
"For this reason I say to you, do not be worried about your life, as to what you will eat or what you will drink; nor for your body, as to what you will put on. Is not life more than food, and the body more than clothing? 26"Look at the birds of the air, that they do not sow, nor reap nor gather into barns, and yet your heavenly Father feeds them. Are you not worth much more than they?


Saturday, August 30, 2014

Living with Bob and "Al"

Conversation is probably the thing Sheri misses the most. Sheri thinks she probably always did most of the talking, but Bob was interactive in his own way. Yesterday on the way home Sheri tried again to have a conversation. It was pouring down rain and Sheri said "Wow, it is really raining hard." Bob looking around and said " there is a loose gravel sign, I have been looking at the blue prints, do I have choir?" Sheri knows she should be grateful he can still speak at all, but she is human and where he is today still hurts.
Conversation... just missing true conversation.

Friday, August 29, 2014

Living with Bob and "Al"

After exhausting herself in search of a new place to live, Sheri has been blessed with a bit of good news. The county is not taking the whole house as she originally though, just a huge chunk of the front yard . The side walk and the road will come closer to her front door but she is feeling like she is just going to have to deal with it. She can not find a place that works on her budget and meets the needs of  Bob and "Al". The work will start in the Spring and maybe it won't be that bad. Who knows with in a year a lot may change with "Al" and Sheri may be looking for a totally different type of living space. At least for the moment she is going to try and stick it out, she has been so stressed over it, she just can't seem to pull a move off right now.
(Thank you cyber friends for worrying with me :)

Thursday, August 28, 2014

Living with Bob and "Al"

Sheri gets so frustrated when Bob follows her around. As soon as Sheri gets up in the morning, "Al" gets up too. She knows it is not his fault, but she so needs that little bit of time to drink her coffee and sit in silence with her cats. Sometimes she can send him back to bed, and sometimes not. Unless you are living it, or have lived it, no one will ever know what this Alzheimer life is like.

Wednesday, August 27, 2014

Living with Bob and "Al"

Bob is concerned about Meeko the cat. "Al" is thinking that her whiskers are way to long and should be trimmed  :)

Tuesday, August 26, 2014

Living with Bob and "Al"

Sheri is wishing she was not such an emotional person. If she could disconnect from her emotions, maybe life would not hurt so much. But then again when she tries to disconnect .... she feels empty. If she disconnects she also does not feel the joy she feels when she looks at nature and all the beauty God has created. Sheri needs to balance her emotions she needs to continue to pause, praise and pray.

Monday, August 25, 2014

Living with Bob and "Al"

Bob told Sheri (several times a day) over the weekend that he was able to convince his boss at "work" (code for (Adult Day Center) to hire a new guy. "Al" said nobody wanted to hire him because they thought another new guy would be too much work. Bob told them "If you train him right from the very first day he will be fine" and after a moment of thought with "Al's" thumb in Bob's belt loop stretching out Bob's back in his usual way "Al" said you just have to have patience with some people.. and they will call you Mr. Bob.
Oh my :)


Sunday, August 24, 2014

Living with Bob and "Al"

While Sheri was focusing on finding joy yesterday, by doing a little indoor photography, "Al" was working on his fashion statement. Shorts on top of pajamas, topped off with a pair of jeans. But in the end does it really matter?