This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character "Al" that I created in 2008, represents the way that Alzheimer's is invading our daily lives.
There is an archive tab further down the page that starts from the beginning of our journey.
Showing posts with label spouses with dementia. Show all posts
Showing posts with label spouses with dementia. Show all posts
When Sheri picked Bob up from "work" (code for Adult Day Center) yesterday. "Al" said he had a difficult day, because he "Just could not get any cooperation from his team, in getting the snow cleared," All Sheri could picture was the dear sweet 80+ year old lady that sits by the front desk ... with a snow shovel attached to her walker :)
"Al" the kind soul that he is , loves his present, the medical ID bracelet that Sheri got him. The only issue Bob has (other than he never wore any kind of jewelry) is that the bracelet slides down on his hand which is really bothering "them". So much so "they" are obsessed with trying to get it to stay in place. Bob was a problem solver, fixing things and solving problems is what he did. So Sheri should not have been surprised to see that Bob came up with his own solution to the bracelet problem, "Al" looped the bracelet over the button and buttoned the button to hold the bracelet in place. Foiled by a button yet again :)
Epiphany Part 2:
The day of the first shower which was this past Tuesday, Sheri was nervous and uncomfortable just thinking about the process, so by early afternoon she had to email to see how it had gone. Sheri got a quick response from the daycare. It went wonderfully well "Al" had whistled himself right through it. Sheri was elated. So very pleased. He did not question it, challenge it, or remember it. Her friends had all prayed that it would go well. What more could she ask for? Until her psyche took over...
Sheri picked Bob up from 'work" (code for Adult Day Center) yesterday and attempted to make conversation as she usually does. "How was your day" she asked. What followed was this. "I was busy separating...football game I did not... no one will say... parking lot." All the while Bob was waving his finger in the air as he spoke.Then "Al" went back to his usual silence and Bob did not say anything else the rest of the way home. Sheri often wonders if in his head..it all sounds right.
Sheri wishes sometimes, that she could go back in time and listen to the words of Bob's heart. She would have listen more intently and cared more deeply about the things that mattered most to him.
Learn from my loss.
Genesis 2:18Then the LORD God said, “It is not good that the man should be alone;I will make him a helper fit forhim.”
Bob can not seem to remember which car door to get into. "Al" apparently, would rather sit in the back seat and be chauffeured around. Oh wait... Bob did mention being on tour again yesterday with Daniel O'Donnell, maybe "Al" was expecting the star treatment :)
Sheri took Bob to Target yesterday, grocery shopping day. The temp was about 15 degrees but the wind was wicked. Sheri parked, hung the handicap sticker, instructed Bob to take off his seat belt and get out of the car. When Sheri got out she realized Bob was having trouble shutting the car door. So she walked over and helped him close it. Thinking he was right behind her she started walking behind the car, to head towards the store. When she turned around to wait for him Bob was nowhere to be found. Sheri panicked for a moment, until she realized "Al" had forgotten if they were coming or going and was back inside the car :)
Sheri had the opportunity to have lunch with a beautiful lady on Friday. A very sweet lady that is the mother of a young woman Sheri worked with many years ago, someone she always felt close to. This sweet lady ( the mother) has had her own "Al" for many years too. It was a blessing to spend time together and talk about things that are hard to talk about with someone who has not walked our walk. God gives us people in our past because He knew back then we would need each other in our future. God is good.