Living with Bob and "Al"

Sheri posts daily because this disease effects every moment of every day. She tries to give you a glimpse of what every day life is like with someone with this disease.  She writes this in third person, so she she can step out of her skin and a step away form the reality that is her journey. She uses humor to keep her head above water, but there is NOTHING funny about the disease itself. She struggles often with how much is to much to share, but she also knows that if she does not speak what life is really like no one will ever know the enormity of the impact this disease has on daily life . So without being too graphic, she will just say that "Al" decided the bedroom floor was the right place to relieve himself in the middle of the night, last night. Sheri is so glad that Bob has no memory of this as this kind, gentle man would be devastated, as Sheri is. She is losing her race against time.
Sheri needs to Pause Praise and Pray.

Living with Bob and "Al"

1:30 am seems to be the bewitching  hour for Bob and "Al" to decide it is time to work on nuts and bolts again.
Ugh.

Living with Bob and "Al"

Sheri is very excited. Daughter number 2 (the one who sheilds her heart with her sleeve) Is coming in from California in a few days! It will be so very good to see her, and just the distaction she needs from real life... stuff. Bob and "Al" do not even know she has been gone, but  family is everything, because in the end, aside from God that is all we've got.

1 Corinthians 13:13
So now faith, hope, and love abide, these three; but the greatest of these is love.

Living with Bob and "Al"

Sheri and Bob were in the car going to the grocery store yesterday. Bob was mumbling something about  the year. Sheri lightheartedly said " well what year is it anyway?" Bob stared out the window a bit and then with an air of  confidence "Al" said "19, lets just leave it at that."

Pslam 90:20
So teach us to number our days that we may get a heart of wisdom.

Living with Bob and "Al"

One of "Al's" new favorite activities, putting nuts on bolts. Sheri is so glad Bob still has the dexterity to do this. Part of her never ending quest to keep "Al" active and involved. One of the hardest things to remember, is that activity's Sheri gives Bob now, do not have to have the same type of purpose as in Bob's real life past. She just tries to find a familiar snippet of a function Bob used to do, simplify it as much as possible and then hopefully "Al" will be able to do it. Trial and error.  :)