Sheri wants her readers to know she is not trying to be a hero in this mess. She knows that caring for "Al" will eventually take a toll on her own health, if it hasn't already. Sheri has been trying to make a plan for what is probably the near future while still living in the moment. She tries hard to give you a peek inside the day to day, moment by moment challenges of this disease, because from the outside people think it is only about forgetting where you put your keys. The cognition part of this is so much more challenging.Yesterday while driving home from church "Al" unbuckled his seat belt twice, not because he was trying to get out of the car, but because he was trying to attach the seat belt to the zipper of Bob's coat. Please know that humor and this blog are Sheri's only saving grace it is the wall holding back the emotional toll. She would be drowning in tears if the flood gates opened.
Thank you for riding the waves with me.
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5 days ago

Sheri, I think you are extraordinary with your sense of humour and everything. However, I know from my own experience - my husband has BvFTD - that sometimes I feel sad with people telling how wonderful and strong I am ; I HAVE to be as strong as possible, with God's good Grace, but I'm leaning heavily against those floodgates all the time to keep them closed so that I don't get overwhelmed by the floodwaters. Not sure if you feel the same, or even if I've been clear, but God gave me a sense of humour too, and thank God for that!
ReplyDeleteI think that way also!
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