This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.

Monday, March 31, 2014

Living with Bob and "Al"

Sheri may look like she handles all of this fairly well, but Alzheimer's disease is thief of all memories, and not just for Bob. Daughter number 1 ( the one who wears her heart on her sleeve) and daughter number 2 ( the one who shields her heart with her sleeve) are also getting robbed. Not only do they lose their past, they lose their future. They lose their future in the fears and tears of  "where they will be next year on this journey". Every holiday becomes ( in the mind) a question of how much worse will it be... and yet the old memories become unbearable for the heart. A slow and painful death of relationship is what this is.Yes, Sheri and the girls laugh, laughing masks the fear and the pain, and laughing produces tears, so no one can tell when they're crying.

Hebrews 11:1 Now faith is the substance of things hoped for, the evidence of things not seen. 


  1. So well said. We are in the midst of EOAD and it is like a huge boulder in the middle of the road of life for everyone. I tried to make Christmas as normal as possible, but in the end, the sadness was suffocating for everyone. It is hard to live in the moment when the future looms with the promise of more loss and more sadness.

    1. Sorry you are in this to Marche Hugs to you.