This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character "Al" that I created in 2008, represents the way that Alzheimer's is invading our daily lives.
There is an archive tab further down the page that starts from the beginning of our journey.

Wednesday, July 11, 2012

Living with Bob and "Al"

Thoughts inside my head


I'm tired , I'm lonely
there is no place to hide
I look for the love we had
behind the shadow in your eyes

I try to be patience, I try to be kind
I try not to be angry, I try not to lie

I try not to remember, the you and me that we were
I try to hold back, not let the memories stir

Yet I want what we had
I want life as it was
I want you to be better
and I want to feel loved

I want to scream from the rooftops
life seems so unfair
for in this moment right now
it seems nobody cares

But instead I will sit quietly
watching you sleep
Because I'm not sure if tomorrow
 you'll be mine to keep.
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3 comments:

  1. AnonymousJuly 11, 2012 at 12:17 PM

    Sheri, I can almost touch your pain with these thoughts. Thank you for sharing both sides of this journey. Thank you for your honesty. May God grant you comfort and love today.

    Sue

    ReplyDelete
    Replies
    1. JayneJuly 11, 2012 at 8:00 PM

      Oh Sheri - I hear you and feel you. Beautifully written and sadly painfully true. Sending, as always, love - Jayne

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  2. AnonymousJuly 11, 2012 at 10:16 PM

    So unfortunately true. It's lonely and heartbreaking. We are asked to do what seems to be beyond us, but we have help from above. It would still be nice to have real arms around us and someone who answers out loud when you speak.
    Hugs to you.

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