This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character "Al" that I created in 2008, represents the way that Alzheimer's is invading our daily lives.
There is an archive tab further down the page that starts from the beginning of our journey.

Monday, June 20, 2011

Living with Bob and Al

Sheri knows Alzheimer's disease is thief of all  memories, but not just for Bob. Daughter number 1 ( the one who wears her heart on her sleeve) and daughter number 2 ( the one who shields her heart with her sleeve) are also getting robbed. Not only do they lose their past,  they lose their future. They lose their future in the fears and tears of  "where they will be next year on this journey". Every holiday becomes ( in the mind) a question of how much worse will it be... and yet the old memories become unbearable for the heart. A slow and painful death of relationship is what this is. Yes, Sheri and the girls laugh, laughing masks the fear and the pain, and laughing produces tears, so no one can tell when they're crying.

3 comments:

  1. you certainly hit the nail on the head....my siblings and I were just talking yesterday about the relationships we had with Dad before alz arrived....I'm the main caregiver and am surprised at the changes, so can't imagine what it's like for those who are only able to come monthly or less often....Thanks so much, Sheri, for sharing. I look for your posts everyday...sort of a kinship, except you are losing your hubs and I am losing my Dad....Thank the Lord that He is there with us...walking alongside us and sometimes carrying us...May you be blessed greatly!!!!

    ReplyDelete
  2. It is so difficult to look at my Mom everyday and still miss her at the same time. I miss the woman she was and will never be again. Thanks for your postings. It helps to know as caregivers we are not going through it alone.

    ReplyDelete
  3. Thank you for your comments, it is a kinship. We must be there for each other. God bless.
    Sheri

    ReplyDelete