This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.

Thursday, April 7, 2011

Living with Bob and Al

Bob called Sheri yesterday to tell her he had been released and was ready to go. Surprised, Sheri said "Oh really?' "Who told you that?" "I don't know" Al said, a lady that came to the room."Sheri told Bob she would look into it, and that she would be there her regular time.
Sheri had already been there for the assessment meeting with the social worker, and according to her, Bob and "Al" aren't going anywhere quite yet. She had reviewed his file from the nursing home, and they are holding true to the recommendation that he needs 24 hour supervision. The social worker filled out the paper work for the Elderly Waiver program, but at the end of all that... she tells Sheri that it probably won't cover
5 days a week of Adult Day Care. Then there was the concern that with the hours Sheri works, she would need other arrangements for hours that the Adult Day Care is not open. She said if Sheri wasn't in the picture her recommendation would be that he would stay in the nursing home, or an assisted living facility with a dementia unit.Sheri is frustrated...How can they tell her he needs 24 hour supervision, but only give her the option to leave him in a nursing home, he does not belong there. Sheri feels alone in this battle. Meanwhile Bob and "Al" had disconnected the TV Sheri had brought into is room for him and "Al" asked Sheri if she had brought boxes for packing up his things. Sheri HATES, HATES, HATES, this disease.Sheri's heart is heavy.

2 comments:

  1. Oh Sheri, I'm so sorry to hear this news. I know that each state has different programs. Massachusetts has a very good program that I keep writing letters to congress and state officials to make sure it isn't cut.

    You are right, he doesn't belong in the home. I wish Bob and Al could have what my mom has.. it makes caring so much easier for her at home.

    The Medicare and Medicaid cuts that we are being threatened with will make it even worse for us. Please call or write to your senators.

    I am writing a petition and will send you a link so that you can sign it.

    I am sick and tired of the fat cat politicians giving our money to corporations in the guise of tax cuts. Taxes that would pay for services to help people like Bob and my mother.

    You are in my thoughts and prayers.

    Here's a big virtual hug {{{{{{{{{{HUG}}}}}}}}}}

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  2. Have you contacted aarp or your area on aging department. Sometimes they may know about other funding sources that might be able to help. Does he qualify for medicaid. You might try them and see if there are any resources. With all the cuts its so frustrating. I would also contact your senators' offices many times they are great and finding help for things.

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