This blog is about life with my husband who was diagnosed with Early Onset Alzheimer's and Frontal Lobe Dementia in 2008. He was 64 at the time although now, knowing more about the disease, Alzheimer's was present many, many years ago, which is why early detection is so important. As you read the blog the character"Al" that I created in 2008 represents the way that Alzheimer's is invading our daily lives.

Thursday, March 24, 2011

Living with Bob and Al

Well a round table discussion finally cleared things up for Sheri. They explained to Sheri that Bob's "Dementia" is mild to moderate, however his memory loss is severe. This means that although he is able to tend to his own needs, he needs 24 hour supervision because of his inability to use good judgment making his safety a huge concern because his brain does not sequence things correctly, therefore getting into the kind of trouble Sheri was having have home. Things like, not realizing he had disconnected the telephone, the battle of the vacuum cleaner, the tub that drained to no where, blowing snow with the leaf blower and taking apart electrical outlets,eek.The staff gave several examples of how those things are sequencing problems. Although Sheri is glad they could it explain it more clearly (She was hung up on the mild dementia part, because she thought "dementia" and memory loss were the same thing), Sheri is still struggling with when she looks at Bob, sometimes he can seem so much like his old self, and yet "Al" is still wondering what "the plan" is... again. 

Psalm 31:3

Since you are my rock and my fortress, for the sake of your name lead and guide me.

2 comments:

  1. Sheri... I'm really happy that the staff at the home have been able to help you to understand what is going on. It's really difficult, I know. I am anxiously waiting for a bed to open for my mom. It's a big worry for me having her at home, she is like Bob, less capable but thinks she can still do things like she once could.

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  2. I sort of understand what they mean... but I'm still hung up on the memory versus dementia too.

    Mom can pass an MME test with flying colors, and can remember all the names of the staff at Daycare. But she can't remember to take medication correctly, or not to eat food that is too hot (she burns her mouth and doesn't seem to realize that she can wait for the food to cool a bit.)

    Those are all memories aren't they? And she can't remember who is taking her to Daycare and has to ask multiple times within a two hour period.

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